Children

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Research and outcomes

The Fetal Concerns Center is the only program of its type in the region and one of only a small number across the country. Since 2000, the Center has served the special needs of expectant women and families, coordinating services for more than 500 families across the United States every year.

Our interdisciplinary team includes various subspecialties with a wide variety of experience, allowing us to provide the best possible care for patients that is specific to their conditions and needs. Our providers are committed to improving treatment options and patient outcomes through research and innovation.

Research

Many of the specialists on the Fetal Concerns Center team have published research specific to fetal care and/or fetal surgery, and we are currently participating in a number of active research studies both locally, nationally, and internationally. The Fetal Concerns Center is also a member of the North American Fetal Therapy Network (NAFTNet), an association of fetal centers in North America with established expertise in fetal surgery and other forms of multidisciplinary care for complex disorders of the fetus. Our interdisciplinary team participates in several active NAFTNet research studies.

Complicated Monochorionic Twin Pregnancy Registry: Twin pregnancies in which the babies share a placenta have a higher rate of complications than other pregnancies. We want to collect information about what happens during these pregnancies so that we can help you make the best decisions possible about care for you and your babies. The study is directed by William Goodnight, MD MSCR, at UNC Chapel Hill, where a national registry is housed.

Fetal Myelomeningocele Repair Registry: Myelomeningocele (MMC) is the most severe form of spina bifida, where the spinal cord and tissues protrude from the baby’s back. Several leading centers, including the Fetal Concerns Center, perform open fetal surgery to repair the exposed spinal canal before birth. We want to collect information about the long term outcomes of babies who have had this procedure. The study is directed by Julie Moldenhauer, MD, at Children’s Hospital of Philadelphia, where a national registry is housed. 

Gastroschisis Outcomes of Delivery (GOOD) Study: Gastroschisis is a condition where the intestines are outside of the baby’s abdomen during pregnancy. Currently, there is not enough information to know the best gestational age for these babies to be delivered. The GOOD study is an international prospective randomized clinical trial that hopes to answer this question. Our own Amy Wagner, MD, co-director of the Fetal Concerns Center, is the PI for the GOOD Study. For more information, please visit the GOOD Study website.

Prenatal Diagnosis of Aqueductal Stenosis Registry: Aqueductal Stenosis (AS) is a condition where the cerebrospinal fluid is blocked from flowing naturally, and can lead to hydrocephalus and a range of neurodevelopmental concerns. We want to collect information to determine the earliest gestational age that AS can be diagnosed. The study is directed by Stephen Emery, MD, at Magee-Womens Hospital of UMPC. He is combining the national registry information with animal studies to determine if a fetal therapy could be developed for AS.
 

Quality and outcomes

Our combined years of experience and expertise leads to excellent quality of care and outstanding outcomes for our patients.

Key surgical outcomes:

  • 100% survival in gastroschisis cases^
  • 93% survival rate of at least one baby for TTTS laser photocoagulation procedures*
  • 89% delivery after 30 weeks post fetal myelomeningocele surgery*
  • 80% survival rate of both babies for TTTS laser photocoagulation procedures*
  • 80% survival rate for congenital diaphragmatic hernia cases^
  • 22% need for ventricular shunting in fetal myelomeningocele patients*

*Data covers time period between 2012 – 2016.
^Data covers time period between 2015-2017.

We care for a variety of fetal conditions and diagnoses at the Fetal Concerns Center. The table below outlines the volumes of various conditions we saw over a 2 1/2 year time frame.

 
 

*Data covers time period between July 2015 – December 2017.

We use fetal MRI to diagnose conditions that are difficult to assess using other forms of imaging, such as ultrasound. Fetal MRI allows us to gain a better view of the fetal brain, chest and abdomen. The chart below details the number of fetal MRI scans we have performed from 2012 - 2016.

 
 
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Get a second opinion

It's important to know what your options are. The Fetal Concerns Center can provide expert opinions to verify or give more information about an initial diagnosis. Contact us today.

Contact us

The Fetal Concerns Center accepts patient self-referrals as well as referrals from providers. For more information or to make an appointment, please call:

(414) 337-4776

Toll free (855) FETALWI (338-2594)

Fax: (414) 337-1884

Note: These phone numbers should not be used for urgent medical concerns. Please contact your physician directly if your situation requires immediate attention, or dial 911 if it is an emergency.