Hypoplastic left heart program volume
Why we measure it - Roughly one out of every 10 babies born with congenital heart disease is diagnosed with Hypoplastic Left Heart Syndrome (HLHS). Repairing this defect through a series of three complex operations is a large portion of what we do at Herma Heart Center. Children's Hospital of Wisconsin in Milwaukee created a highly specialized HLHS clinic to exclusively care for and monitor these fragile babies.
What this means
- Research shows that physicians and hospitals that treat a large number of patients tend to provide better care and have improved outcomes for treatments and procedures. Our visit volumes have increased significantly since 2009 showing that we're seeing and treating more patients with Hypoplastic Left Heart Syndrome.
About the data
- This graph shows the number of patient visits to the HLHS clinic from 2009 to 2012.
Related dimensions of care:
- Our unique HLHS Clinic is run by our dedicated pediatric nurse practitioners who specialize in caring for infants with HLHS. They work closely with our physician specialists.
- Appointments are scheduled every two weeks and usually last about 2 hours. Each appointment focuses on weight gain or loss, food intake and growth. Your child will be seen by all of the specialists on the interstage team during this time.
- We are recognized globally for developing the first home monitoring program of its kind, which is used primarily for infants born with HLHS. The program tracks an infant's developmental progress and recovery rate after their first of three heart surgeries needed to treat this condition. Implementation of the home monitoring program has led to better survival outcomes and lower hospital readmission rates.
- Before a child with HLHS is released from the hospital, parents are trained how to track their child's weight gain or loss, oxygen levels, fever or any other illnesses that develop in a daily log book. This data is collected during what is called the interstage period, which is the wait time between the completion of the first surgery and the scheduled second surgery.
- Each patient is assigned to an interstage management team which includes a pediatric cardiologist, cardiac intensivist, dietitian, speech and feeding specialist and social worker.
- Parents are given a pager that gives them direct access to interstage team members. This enables parents to quickly report problems or concerns and allows our specialists to intervene earlier.