PHACE Syndrome registry resources

Children's Hospital of Wisconsin

Children's is home to the PHACE Registry research study and many of the lead investigators in PHACE research.

PHACES Foundation of Canada

logPHACEFOCThis Canadian charity organization is committed to advocating, educating and supporting PHACES Syndrome throughout Canada and internationally.

NOVA

logNOVAThe National Organization of Vascular Anomalies provides information and assistance in the management of hemangiomas and vascular malformations, including PHACE Syndrome.

PeDRA

logPeDRAThe Pediatric Dermatology Research Alliance aims to form a solid foundation for pediatric dermatology research.

HIG

logHIGThe Hemangioma Investigator Group is dedicated to advancing knowledge regarding infantile hemangiomas through collaboration, research and education.

PHACE Syndrome Community

logPHACESCThe PHACE Syndrome Community is a United States non-profit dedicated to serving those affected with PHACE and their family, friends and community.