PHACE Syndrome registry resources
Children's Hospital of Wisconsin
Children's is home to the PHACE Registry research study and many of the lead investigators in PHACE research.
PHACES Foundation of Canada
This Canadian charity organization is committed to advocating, educating and supporting PHACES Syndrome throughout Canada and internationally.
The National Organization of Vascular Anomalies provides information and assistance in the management of hemangiomas and vascular malformations, including PHACE Syndrome.
The Pediatric Dermatology Research Alliance aims to form a solid foundation for pediatric dermatology research.
The Hemangioma Investigator Group is dedicated to advancing knowledge regarding infantile hemangiomas through collaboration, research and education.
PHACE Syndrome Community
The PHACE Syndrome Community is a United States non-profit dedicated to serving those affected with PHACE and their family, friends and community.