Tracheal Surgery Volume
Why we measure it - Research shows that physicians and hospitals that treat a large number of patients tend to provide better care and have improved outcomes for treatments and procedures. Tracheal stenosis (narrowing of the airway) is a rare and potentially life-threatening condition. It can be treated surgically by a team of specialists and careful monitoring before and after surgery.
What this means - Tracheal surgeries are very rare. Children's Hospital of Wisconsin has one of the only programs in the country specializing in tracheal surgery.
About the data - The data represents the number of surgeries involving the airway performed at Children's Hospital for the calendar years 2008-2012. These include tracheoplasty, tracheopexy, broncheopexy, and vascular ring and sling repairs.
Related dimensions of care:
What we're doing to provide the best care:
- Children's Hospital surgeons have developed innovative techniques, such as tracheopexy, to improve outcomes and avoid tracheostomy in these complex patients.
- Patients receive comprehensive care from a dedicated tracheal services team, including specialists in pediatric cardiothoracic surgery, pulmonology and radiology. This multidisciplinary team meets regularly to develop individual plans of care for each patient.
- Approximately 40 percent of patients with a tracheal disorder also have a congenital heart defect. Patients benefit from skilled Herma Heart Center specialists, know nationwide for their expertise in cardiothoracic surgery.
- We have the only cardiothoracic surgeons in the state of Wisconsin with American Board of Thoracic Surgery Certificates in Congenital Heart Surgery.
- A specialized nurse coordinator provides case management services for every patient with a complex tracheal disorder. Comprehensive case management allows for seamless care coordination between specialists, facilitates medical record acquisition, and streamlines follow-up plans and scheduling.
- Following surgery, patients receive care in our Airway, Digestive and Voice Center where tests such as bronchoscopies and bronchograms provide detailed airway images. These images allow specialists to monitor progress and quickly diagnose and treat any potential problems.
- To improve patients' quality of life, a Developmental Follow-up Program also is available. A team of specialists, including doctors, nurses and occupational, physical and speech therapists specialize in assessing a child's growth and progress.
- We have pediatric-trained anesthesiologists, which is essential in such complex surgeries.
- Children recover in our cardiac intensive care unit where they receive the highest level of care possible by pediatric-trained nurses and doctors.
- Our specialists have been trained by experts from England and continue a relationship with the Great Ormond Street Hospital, currently the largest center in the world for tracheal surgeries.
- We conduct genetic research to determine the root cause of these problems, as well as quality of life studies to ensure children develop to their fullest potential. Current studies include management and outcomes for vascular rings and slings, impact of tracheopexy on tracheomalacia and airway outcomes, standardized clinical follow-up of slide tracheoplasty patients, association of 22q11.2 deletion syndrome with vascular anomalies, and genetic analysis of tissue from patients with congenital tracheal stenosis.
- We have a highly specialized Children's Transport Team available 24 hours a day to stabilize and transport seriously sick and injured infants and children to our center. Nearly 1,500 transports are provided each year.
- Families traveling from long distances are encouraged to use our Family Accommodations Program. This program helps families make travel arrangements and schedule and coordinate appointments. Children's Hospital has partnered with non-profit organizations like Ronald McDonald House and Kathy's House to offer comfortable, "home away from home" accommodations. Local hotel chains on our referral list also offer discounts for families.
- For patients who require a tracheostomy tube, we have two nurses dedicated to the care of tracheostomy patients from surgery through long-term follow-up. A discharge coordinator also helps arrange for home nursing care for patients.
Patients and families:
- Be an advocate for your child. Participate in daily bedside clinical discussions and provide any information about your child that may be helpful to staff.
- Follow medical instructions fully and carefully before and after surgery.
- Ask questions if you don't understand the plan of care or if you are not sure how to care for your child at home.
- Attend any and all follow-up appointments.
- Referring physicians can access our specialists for consultation or transport 24 hours a day. Call our physician referral line at (800) 266-0366.
- Health care providers from outside of our southeastern Wisconsin service area are encouraged to use our web-based
e-Consult service. This service is available for non-urgent patient cases only and gives providers access to our specialists to review patient cases, obtain medical advice or second opinions, and receive care recommendations for rare symptoms and illnesses.
e-Consult is not to be used by the general public, parents/guardians or families.
- Care guidelines for medical professionals
- Educational materials
- Pocket Directory
If you have questions about this information, email us or call (414) 266-6556.
At just two weeks old, Noah was admitted to Children's Hospital because he had trouble breathing and his pediatrician detected a heart murmur. Our specialists found he had severe tracheobronchomalacia and a congenital heart defect. At one month old, surgeons repaired his heart and trachea using a pioneering surgical technique called tracheopexy. Now 2 years old and thriving, Noah receives follow-up care at Children's Hospital every four months.