Quality and Outcomes Reports - Herma Heart Center
Hypoplastic Left Heart Syndrome Clinic Volume
Why we measure it - Roughly one out of every 10 babies born with congenital heart disease is diagnosed with Hypoplastic Left Heart Syndrome (HLHS). Repairing this defect through a series of three complex operations is a large portion of what we do at Herma Heart Center. Children's Hospital of Wisconsin in Milwaukee created a highly specialized HLHS clinic to exclusively care for and monitor these fragile babies.
What this means - Research shows that physicians and hospitals that treat a large number of patients tend to provide better care and have improved outcomes for treatments and procedures. Our visit volumes have increased significantly since 2009 showing that we're seeing and treating more patients with Hypoplastic Left Heart Syndrome.
About the data - This graph shows the number of patient visits to the HLHS clinic from 2009 to 2012.
What we're doing to provide the best care:
- Our unique HLHS Clinic is run by our dedicated pediatric nurse practitioners who specialize in caring for infants with HLHS. They work closely with our physician specialists.
- Appointments are scheduled every two weeks and usually last about 2 hours. Each appointment focuses on weight gain or loss, food intake and growth. Your child will be seen by all of the specialists on the interstage team during this time.
Home Monitoring Program:
- Herma Heart Center at Children's Hospital of Wisconsin in Milwaukee is recognized worldwide for pioneering the first home monitoring program of its kind to care for infants with HLHS.
- Before a child with HLHS is released from the hospital, parents are trained how to track their child's weight gain or loss, oxygen levels, fever or any other illnesses that develop in a daily log book. This data is collected during what is called the interstage period, which is the wait time between the completion of the first surgery and the scheduled second surgery.
- Each patient is assigned to an interstage management team which includes a pediatric cardiologist, cardiac intensivist, dietitian, speech and feeding specialist and social worker.
- Parents are given a pager that gives them direct access to interstage team members. This enables parents to quickly report problems or concerns and our specialists to intervene earlier..
- Families that participate in the home monitoring program have lower hospital readmission rates during the interstage period compared to other pediatric centers.
Patients and families:
- If you need to schedule or reschedule an appointment, please call Central Scheduling at (877) 607-5280 or (414) 607-5280 as soon as possible.
- Arrive 15 minutes before your scheduled appointment so we can gather needed information from you before you see the doctor.
- Check with your insurance provider before your visit to see if a referral is needed to see a specialist at Children's Hospital.
- Bring the name, address, phone and fax numbers of your primary care and/or referring doctor so we can update them appropriately on your care.
- Bring a full list of the medications your child is taking including over-the-counter medicines such as vitamins and supplements.
- Referring physicians can access our specialists for consultation or transport 24 hours a day. Call our physician referral line at (800) 266-0366.
- Health care providers from outside of our southeastern Wisconsin service area are encouraged to use our web-based e-Consult service. This service is available for non-urgent patient cases only and gives providers access to our specialists to review patient cases, obtain medical advice or second opinions, and receive care recommendations for rare symptoms and illnesses. e-Consult is not to be used by the general public, parents/guardians or families.
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