Quality Reports - Gastroenterology, Hepatology and Nutrition Center
Survival Rates by Diagnosis
Why we measure it - Overwhelmingly, survival is the first and most important statistic parents and others ask about. We measure survival rates for Inflammatory Bowel Disease and Liver Disorders and compare ourselves to the national average to make sure we are providing excellent care.
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Patient Impact
Shortly after birth, Corrina's pediatrician referred her to Children's Hospital after routine lab work showed that bile wasn't draining from her liver. Our specialists diagnosed her with biliary atresia, a condition in which bile ducts are blocked. To correct the condition, doctors operated on Corrina at just 11 weeks old. Today, a happier, healthier Corrina (shown here at 10 months of age) meets with her team of doctors once a month to monitor her condition. | What this means - We have 100 percent survival for Inflammatory Bowel Diseases and 97.7 percent survival rate for Liver Disorders compared to the national average of 100 percent and 98.1 percent respectively.
About the data - The data reflects the survival-to-discharge rate for diagnoses within the above disease groups at Children's Hospital compared to Pediatric Hospital Information System (PHIS) peers. PHIS hospitals represent other leading free-standing pediatric hospitals.
Related dimensions of care:
  
What we're doing to provide the best care:
- Our team of gastroenterologists, transplant surgeons, pediatric nurse practitioners, a registered dietitian, and dedicated transplant pharmacists provide care to liver disease and liver transplant patients before, during and after liver transplantation. This interdisciplinary team follows children closely and provides education, support and ongoing management.
- Key members of our Inflammatory Bowel Disease (IBD) team include pediatric nurse clinicians, dietitians and psychologists who work in partnership with families to build individualized and comprehensive treatment plans to optimize care.
- The IBD program provides nutritional assessment and management to maximize growth and development and minimize long-term complications such as osteoporosis.
- Our specialists conduct cutting edge research to provide patients with access to the newest therapies. Genetic research also is helping predict treatment outcomes.
- A highly specialized Children's Transport Team is available 24 hours a day to stabilize and transport seriously sick and injured infants and children to our center. More than 1,500 transports are provided each year.
Patients/Families:
- Contact Central Scheduling to start your child's visit arrangements. Please have the name, address, and phone and fax numbers of your primary care and/or referring doctor available when you call.
- The Family Accommodations Program is available to help make travel arrangements and provide information on how to make your stay in Milwaukee easy and enjoyable.
- Please work with your child's referring physician and insurance company to determine if a referral or authorization is required for the visit.
Referring physicians:
- Referring physicians can access our specialists for consultation or transport 24 hours a day by calling our physician referral line at (800) 266-0366.
- As appointments are scheduled, the GI Center will contact you to arrange transfer of any pertinent patient documentation, including test results and growth charts.
If you have questions about this data or information, e-mail us or call (414) 266-6556.
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