Related Links
This page includes links to sites that can provide information related to health and medical issues and conditions often needed or requested by families who visit our clinic. If there is other information you would like us to add, e-mail us at dscw@chw.org.
Autism and Down syndrome
www.disabilitysolutions.org - For instructions on joining a List-serv for families who have children with Down syndrome and autism e-mail the clinic at dscw@chw.org.
ADHD and Down syndrome
www.ds-health.com/add.htm
Behavior
Self Talk - www.disabilitysolutions.org/pdf/2-2.pdf - Findings from the Adult Down Syndrome Center regarding the frequent occurrence of self talk in adults with Down syndrome.
Celiac Disease
Celiac Sprue Association - www.csaceliacs.org
National Institute of Diabetes & Digestive & Kidney Disease - www.niddk.nih.gov/health/digest/pubs/celiac/index.htm
North American Society for Pediatric Gastroenterology & Nutrition - www.naspgn.org/sub/diseaseinfo.asp
New Book- "Kids with celiac disease" - www.woodbinehouse.com
Growth Hormone Treatment in children with DS
www.denison.edu/dsq/growthhormone.html
Sexuality Issues
Issues for young children - www.disabilitysolutions.org/pdf/4-5.pdf
Issues for adolescents and adults - www.disabilitysolutions.org/pdf/4-6.pdf
Newsletters/Publications
Disability Solutions - www.disabilitysolutions.org - is an informational newsletter designed to help families and others interested in Down syndrome and related disabilities. Each newsletter addresses a theme. The newsletter is published quarterly and is free. Interested individuals can subscribe by e-mail subscription@disabilitysolutions.org , call (503) 244-7662 or fax mailing information to (503) 246-3869.
Down Syndrome Quarterly is an interdisciplinary journal created to advance knowledge on Down syndrome in the areas of medical, behavioral, and social scientific research. It is published quarterly. To subscribe visit www.denison.edu/collaborations/dsq/.
Publishing Houses
Woodbine House - www.woodbinehouse.com - This publishing house specializes in resources related to children with special needs. Good collection of books for parents and professionals on Down syndrome. 1-800-843-7323.
Brookes Publishing - www.brookespublishing.com - offers quality resources on child development, education and disabilities. Many of the resources, although not specific to Down syndrome, nevertheless are relevant.
James Stanfield Company - www.Stanfield.com - this company develops and sells curricula that include videos and educational materials for challenged and at risk students. Subject areas are focused around School to Work, Social and Life Skills, Sexuality Education and Relationships, and Conflict Resolution skills.
Other helpful links
Len Leshin Web site - Len Leshin, MD, FAAP, is a pediatrician and father of two, one whom has Down syndrome. His Web site is very comprehensive and includes specific health and medical information.
The Down Syndrome Quarterly - The Down Syndrome Quarterly, is an interdisciplinary journal on Down syndrome. The site lists a table of contents from past journals and posts position papers on Vitamins and DS, Growth Hormone Treatment, as well as Health Care Guidelines, that can be accessed by non-subscribers. David Smith, MD, medical director of the Down Syndrome Clinic of Wisconsin, edits the abstracts in this publication.
National Down Syndrome Society - The National Down Syndrome Society site includes a clinical information section written by well-known and respected health professionals. Health and medical information includes The Heart and DS, Endocrine Conditions in DS (thyroid), Alzheimer's Disease and Sexuality in DS. The site also provides a general information section for parents and professionals.
Down syndrome list serv - This site provides a compilation of contributions from experienced professionals and parents who are subscribers to the Down Syndrome listserv. Of particular interest is the Medical Articles section that provides information on Menstrual Management, Genetics, and Tips for Family Physicians on working with families who have children with DS.
Growth charts - Down syndrome growth charts are available at this site.
Down Syndrome Association of Wisconsin - The Down Syndrome Association of Wisconsin (DSAW) was created in 1990 in order to support families and individuals with Down syndrome. Their web site offers a calendar of local events for families, an online newsletter, and other links to national DS organizations. |
