Neurofibromatosis and RASopathy Center
The Neurofibromatosis and RASopathy Center, a multidisciplinary clinic of the Genetics Center, is one of only a few designated centers nationwide that provides diagnosis, education, counseling, treatment and care coordination services to children and adults with neurofibromatosis and other disorders related to the RAS pathway.
Our specialists diagnose and treat the following conditions:
- Capillary malformation-arteriovenous malformation syndrome.
- Cardio-facial-cutaneous syndrome.
- Costello syndrome.
- Legius syndrome.
- Multiple lentigines syndrome (formerly known as LEOPARD syndrome).
- Neurofibromatosis type 1.
- Neurofibromatosis type 2.
- Noonan syndrome.
- Tuberous sclerosis complex.
Our team of physicians and health care providers share a vision to provide excellent care all in one visit. Each patient is evaluated and treated as needed by a team of specialists from a variety of different areas. Specialists work together to determine the most effective care plan and treatment for each patient.
Physicians and co-directors:
Families work with an evaluation and care team that includes specialists in the following areas:
- Social workers.
- Speech-language pathologists.
- Physical and occupational therapists.
- Health care professionals from other specialties, including ophthalmology, orthopedics, plastic surgery, neurosurgery, oncology, endocrinology, gastroenterology, renal and cardiology, are available as needed on a referral basis.
Learn more about what happens at a clinic visit.
Appointments: To make an appointment, call Central Scheduling at (414) 607-5280 or toll-free at (877) 607-5280. Physician referrals may be needed.
Location: The Neurofibromatosis and RASopathy Center is located on the first floor of the Children's Hospital of Wisconsin Clinics Building in the Special Needs Clinic. Click here for directions and parking information.
Contact us: For more information, call (414) 266-3347. Our fax number is (414) 266-1616.