Julie A. Panepinto, MD, MSPH

Titles
Pediatric hematologist, Children's Hospital of Wisconsin; associate professor, Pediatrics, Medical College of Wisconsin.

Division
Hematology/Oncology/Bone Marrow Transplantation.

Research interests
Bleeding and blood disorders, sickle cell anemia, clinical effectiveness and outcomes, health disparities, health services.

Study interests
Patient reported outcomes, health-related quality of life, sickle cell disease.

Education
Medical degree, Southern Illinois University School of Medicine, Springfield, 1991; MSPH, Epidemiology, University of Colorado Health Sciences Center, Denver, 1997; residency, Pediatrics, University of Wisconsin Hospital and Clinics, Madison, 1994; fellowship, Pediatric Hematology/Oncology/Bone Marrow Transplant, University of Colorado Health Sciences Center, Denver, 1997.

Certifications
Pediatrics, Pediatric Hematology/Oncology

Honors
Health Care Financial Management Association Award for outstanding thesis in health economics, 1997; Faculty Teaching Award, Brown University/Rhode Island Hospital, 2000; Named Best Doctor by Best Doctors, Inc., 2006-2009.

Representative publications

• Kam J, Panepinto JA, Brandow AM, Broussear DC. Parental Perception of Quality of Hospital Care for Children with Sickle Cell Disease. Wisconsin Medical Journal. 2008; 107(3):131-135.
• Panepinto JA, Pajewski N, Foerster LM, Hoffmann RG. The Performance of the PedsQL Generic Core Scales in Children with Sickle Cell Disease. Journal of Pediatric Hematology/Oncology. 2008; 30:666-673.
• *Brandow AM, Brousseau DC, Panepinto JA. Post-discharge Pain, Functional Limitations, and Impact on Caregivers of Children with Sickle Cell Disease Treated for Painful Events. British Journal of Hematology. 2009; 144:782-788.
• Panepinto JA, Pajewski NM, Foerster LM, Sabnis S, Hoffmann RG. Impact of Family Income and Sickle Cell Disease on the Health-related Quality of Life of Children. Quality of Life Research. 2009; 18:5-13.
• Brousseau DC, Mukonje T, Brandow AM, Nimmer M, Panepinto JA. Dissatisfaction with Hospital Care for Children with Sickle Cell Disease: not just Race and Chronic disease. Pediatric Blood and Cancer. 2009, in press.
• Panepinto JA, Hoffmann RG, Pajewski NM. A Psychometric Evaluation of the PedsQL Family Impact Module in Parents of Children with Sickle Cell Disease.  Health and Quality of Life Outcomes. 2009; in press.

Grants

• Silent Infarct Transfusion Trial (SITT), National Institutes of Health, co-investigator.
• Health-related Quality of Life in Sickle Cell Disease, National Heart, Lung and Blood Institute, principal investigator.
• The Development of the PedsQL in Sickle Cell Disease, National Heart, Lung and Blood Institute, principal investigator - project 3.
• Improvement of Communication Process and Outcomes after Newborn Genetic Screening, National Heart, Lung and Blood Institute: co-investigator.
• Assessing Decision Making in Visits by Children with Chronic Disease, Institute for Clinical and Translational Research, University of Wisconsin, Madison, Wisconsin, consultant.

Contact
Children's Research Institute
8701 Watertown Plank Road
Wauwatosa, WI 53226
Phone: (414) 456-4170
Fax: (414) 456-6543
E-mail: jpanepinto@mcw.edu