Velocardiofacial Syndrome Clinic

• Heart defects.
• Palate abnormalities.
• Immune deficiencies.
• Hypocalcemia.
• Subtle facial dysmorphology.
• Speech/language delays and disorders.
• Fine and gross motor difficulties.
• Learning disabilities.
• ADHD.
• Poor social skills.
• Small stature.
• Orthopedic issues.

Because of the wide spectrum and variable degree of expression of the findings, VCFS is significantly under diagnosed and therefore under treated. 

Children's Hospital of Wisconsin offers a multidisciplinary clinic designed to address the various medical, educational, and psychosocial needs of the children and their families with this syndrome. The team provides coordinated care and individualized case management by experienced professionals. They include:

• Genetics.
• Speech-language pathology.
• Otolaryngology.
• Audiology.
• Psychology.
• Occupational therapy.
• Physical therapy.
• Immunology. 
• Gastroenterology.
• Other specialists as needed, such as Cardiology, Orthopedics, Endocrinology, Plastic surgery or Dental.

Location 

• Children's Hospital of Wisconsin Clinics  Building.
• Clinic visits range from 4-6 hours depending on the number of specialists a patient needs to see.
• Insurance pre-authorizations and referrals may be necessary. Each specialist bills separately.

Appointments

To make an appointment call LuAnn Weik, MS, CGC, program coordinator and senior genetics associate, at (414) 266-2031.

Parent Support Network

VCFS Parent Network is a Greater Wisconsin group for families living with Velocardiofacial Syndrome (VCFS)/22Q Deletion Syndrome that offers:

• Networking for children and their parents.
• Professionals knowledgeable on subjects concerning school, health, etc.
• Family get-togethers.
• Conferences and workshops.
• Support and resources.

Events are scheduled on a periodic basis.  You are welcome to contact any one of the parent leaders listed below for general information, updates and questions about events. 

To receive email alerts and/or mailings regarding events, resources, etc., register your contact information by emailing Ms. Angie Turner.

For all other questions, feel free to contact any one of the following parents:

• Jenny
• Amy Vervelde
• Jackie Hribernik
• Deborah Briggs