Family Advocacy Day stresses the importance of children’s hospitals

Children's Hospital of Wisconsin is dedicated to advocating on behalf of our patients and families at the local, state and national level with the goal of positively impacting legislation that affects the health of children and families in Wisconsin and nationwide. Patients and their families are our strongest advocates when it comes to educating policymakers about the impact of public policies on children's health.

Speak Now for Kids Advocacy Day, June 2015

Kelly and Brian Lynch and their daughter Cailinn, 7, represented Children's Hospital of Wisconsin in Washington, D.C., at meetings with federal lawmakers as part of Children Hospital Association's Family Advocacy Day in partnership with Speak Now For Kids.

Cailinn is seven years old and first came to Children's when she was three months old after being diagnosed with a rare genetic arrangement that only two other people in the entire world have been diagnosed with. Since that time, she has undergone more than two dozen surgeries and procedures and spent more than 400 days inpatient at Children's. She is seen by more than 20 specialists, and her care is coordinated through Children's Special Needs Program.

Read more about Cailinn and her journey on Children's Hospital of Wis. blog page; Children's Hospital of Wisconsin speaks out in Washington, D.C., on behalf of our patients and families

Lynch family meets with members of Congress

The Lynch family met with Senator Ron Johnson, Senator Tammy Baldwin, Congressman Paul Ryan and Congressman Ron Kind to discuss the importance of federal policies that provide Cailinn, and millions of other children, access to high-quality pediatric care.

Video: Cailinn's story

The Lynch family urged lawmakers to protect Medicaid, which is the single largest insurer for kids in the United States. Approximately, 53 percent of patients at Children’s Hospital of Wisconsin are insured by Medicaid.

They also discussed the importance of coordinating care for children with medical complexity and urged Members to cosponsor the ACE Kids Act, which seeks to improve for children with medical complexity nationwide and is modeled on our Special Needs Program. Visit to learn more about federal issues that affect kid’s health care.

Their visit to Washington, D.C. was covered by WISN-TV and WDJT-TV.