Family Advocacy Day stresses the importance of children’s hospitals
Patients and their families are our strongest advocates when it comes to educating policy makers about the impact of public policies on children's health and why it is important that the pediatric community has a voice in health policy discussions.
Family Advocacy Day 2016
Jessica, Wayne and their son Avery, from Arpin, WI, represented Children’s Hospital of Wisconsin in Washington, D.C. in meetings with members of Congress as part of Children Hospital Association’s Speak Now for Kids Family Advocacy Day. Over 40 other children attended the event, representing 35 children’s hospitals across the country.
Avery came to Children’s when he was four years old after suffering a sudden stroke as a result of a rare genetic disorder, Hereditary Hemorrhagic Telangiectasia (HHT). Dr. Patricia Burrows and her team evaluated Avery and identified arteriovenous malformations (AVMs) in Avery’s lung and brain. Avery will continue to receive care at Children’s to treat his condition.
Wilson family meets with legislators
The Wilson family met with Senator Ron Johnson, Senator Tammy Baldwin, Congressman Sean Duffy and Congressman Ron Kind to discuss the importance of federal policies that provide Avery, and millions of other children, access to high quality pediatric care.
Video: Watch Avery's story
The Wilson family shared Avery’s story and urged lawmakers to protect Medicaid, which is the single largest insurer for kids in the United States. Approximately, 54 percent of patients at Children’s Hospital of Wisconsin are insured by Medicaid.
Patients and their families are our strongest advocates when it comes to educating policymakers about the impact of public policies on children’s health and why it is important that the pediatric community has a voice in health policy discussions.